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Despite it all, Sarah continued to shine. We followed her lead and tried to let her experience as much life as she could. She lost her hair, was sick, gained weight, lost weight and still had a smile and laugh for us every day. Her sense of humor was always present. She also loved Barney and animals, especially elephants. She enjoyed going out and visiting with family and friends. Sarah was funny, crazy, could have a temper, courageous and was the best daughter we could have. We truly treasured her. Sarah passed away November 13, 2008 surrounded by family. While we have a hole in our hearts and the world seems a little dimmer, we are so proud of her. Sarah taught us much about life and what’s important in it. She is greatly missed.